“No decision about me without me’ in these terms goes far beyond traditional methods of engagement and consultation to include patients and the public as shared decision-makers at all levels of healthcare organization and delivery.”
The UK National Health Service commissioned research to explore the economic case for public and patient involvement (http://healthandcare.dh.gov.uk/economic-case-for-ppi/ ). InHealth Associates undertook 14 UK-based case studies to explore the relationship between meaningful and effective involvement and economic, quality and user benefits for NHS, partners and the populations they serve.
The study drew the following conclusions:
- Applying a process of business case and economic thinking to involvement planning and activity could yield valuable results such as preventing delays and reducing costs
- Consideration of the economic case for involvement is an innovative form of risk assessment
- Good involvement utilises untapped resources and turns them into valuable business assets
- A Decision Support Tool can promote the systematic capture of information prompting an ‘involvement culture’ to inform key decisions around current and future involvement effort (9, 2011)
These findings contribute to a growing body of international evidence about the merits and necessity of institutionalizing good public involvement in critical dimensions of healthcare design, delivery and evaluation. Public involvement needs to front and centre in strategic thinking about how to address healthcare system innovation in Canada if we are to effectively address current shortcomings and looming challenges.

-Mary Pat MacKinnon-



How patient engagement in healthcare leads to better decisions…
Monday, March 26th, 2012
Health system leaders are right that decisions about care should be “evidence based” – grounded in what we know works to make people healthier and ensure they have a positive experience in their care journey.
But, what counts as “evidence”?
Most people agree that clinical data plays an important role, through population health statistics, academic research on health administration, etc.
Just as important, however, is evidence from people as they work their way through the health system – patients as well as their friends or family caregivers.
Patients and caregivers have unique and important perspectives that help improve services. Their experiences tell us what’s working, what needs to be improved for patients, and how it can be improved. That’s why there’s a growing interest in public involvement or “patient engagement” in healthcare, and a recognition that it leads to better decisions about how to better deliver health services for patients and their families.
I was recently asked to be part of an expert panel discussion on patient engagement, organized by the Canadian Institutes of Health Research (CIHR) and Health Canada. Other panelists were:
Ellis Westwood participates in an expert panel on public involvement and health care
Together with participants, we had an interesting discussion about the myths, realities and challenges of involving the public in healthcare decisions. From the conversation, my two biggest take-aways were that:
Ascentum has just finished a large-scale engagement project in Ontario for The Change Foundation about the experiences of seniors with chronic health conditions and their caregivers. This is just one example of how patient engagement is being used to create a more patient-centred healthcare system. The results of this engagement will be released in the upcoming weeks, and when they are we’ll make sure to share them with you here.
- Ellis Westwood -
Tags: café scientifique, CIHR, Health Care, health care research, Informed Participation, LHIN, public engagement, Public Involvement
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